A Revisit Of “Open Lung Biopsy – My Truth”

Twelve years ago today I officially began this journey with Sarcoidosis when I had an open lung biopsy. Four years afterwards I wrote about it. Once more I give you my experience of the worst operation I ever had, but as bad as the experience was, I never regret doing it. I finally gave in…

Prednisone Withdrawal Is No Fun

Today marks exactly 10 years, non stop, that I am on Prednisone for sarcoidosis. The side effects of this medication can be horrendous, but thankfully my experience in those ten years were just mostly mood changes, thining skin and some weight gain. I am told that for being on it so long, my weight gain…

The Weekend Worthy Revisit: Forgetting Buddy’s Birthday

  Originally Posted on September 17, 2011 I am great at remembering dates and numbers. I know obscure dates, phones numbers from my childhood, even most of my account numbers and credit card numbers. Today I realized I forgot Buddy’s Birthday. It was his birthday last August 28th, and I forgot. It’s pretty hard for…

When A Day At The Hospital Can Be A Pleasant Experience

All too often we are quick to list the bad days we have, the horrible people we meet and bad experiences we encounter. I know that I too am guilty of that in my blog. I have a pet peeve with rudeness, and I posted before about some of my negative experiences with nurses. Is…

V Is For Vacation

This is a Blogging From A To Z Challenge Post April 25th – V I will be taking a few days off from my blog, and I am resigning from the blogging A to Z challenge. I am having my heart catheterization on Monday morning, and I need to just concentrate on me and my…

Q Is For Quiet

This is a Blogging From A to Z Challenge post April 18th – Q This year is nine years since being diagnosed with Sarcoidosis, and in that time I found that it is best to be quiet about my conditions, the way I feel and all what’s going on with me. My wife gave me…

O Is For Operations

This is a Blogging From A to Z Challenge post. April 17th – O If you told me nine years ago today that by now I would have five different operations, four of them alone heart related, I would probably have laughed. And then if you would have told me that I would have a…

L Is For Lung Biopsy

This is a Blogging From A To Z Challenge Post April 14th – L Yesterday was the anniversary of what I can honestly say was the start of of the worst three weeks of my life. Nine years ago yesterday I had an open lung biopsy to definitely diagnose my pulmonary sarcoidosis. (To read about…

The Wisdom Of Angelina Jolie

Angelina Jolie is a beautiful, talented actress and a phenomenal humanitarian. Recently, when she learned that she had the gene for breast cancer, she took preventative steps and had a double mastectomy. Recently again, she had a blood test that showed she had markers for possible early cancer, and she had her ovaries removed. The…

Quiet Like A Low Tide, But My Tide Is Coming Back In

Since my surgery in July to replace my implanted defibrillator, just like a beach at low tide, my blog has been pretty quiet, and many of you have written in to see how I am doing and I really do appreciate the thoughts. Yes, I have been quiet on here, and I hope that I…

Recovery Should Be Like A Slow Walk Down A Flowered Path

Today marks three weeks since I had my defibrillator replaced, and I was thinking, wouldn't it be great if recovery from surgery was as easy and delightful as walking down a flowered path? Who am I kidding? This surgery marks is my fifth one since being diagnosed with sarcoidosis in 2007, and as far as…

Anatomy Of A Surgery – My ICD Replacement

On Tuesday I had my ICD (Implanted defibrillator) replaced as my original one that was implanted in 2007 because of heart failure due to sarcoidosis, battery reached its threshold. I looked on the internet to find any one else’s experience with having the surgery, but no such luck. All I could find was the device…

What Do You Mean I Can’t Shower For Three Days?!

In a few days I will have my implanted defibrillator replaced as my current one has reached its battery threshold, and I received the post op restrictions from my doctor's office. Among the instructions is no showers for three days.