And Then There Was One

1 mg of Prednisone. That is what I am down to. I haven’t been this low on a dose since starting the drug in 2006. The lowest I was ever able to get to was 3 mg and all hell would break loose, prompting me to go back up prednisone. Now I made it to…

Avoiding The Purity Sales Pitch

Sitting on the over stuffed, over sized grey leather sofa, I face him, amazed by his frizzed out hair and his 70s sense of fashion. He asks me a million and one questions about my health history, going even deeper into my emotional history. No other doctor had done that before. He studies me intently,…

Easing Into Daylight Savings Time

I work weekends so I really don’t like when the clocks spring ahead on Sundays because I lose an hour of sleep, so my wife and I came up with a way to ease into it. Starting on the Wednesday night we set all the clocks ahead 15 minutes and then each next day another…

Prednisone Withdrawal Is No Fun

Today marks exactly 10 years, non stop, that I am on Prednisone for sarcoidosis. The side effects of this medication can be horrendous, but thankfully my experience in those ten years were just mostly mood changes, thining skin and some weight gain. I am told that for being on it so long, my weight gain…

Do I Look Like An Old Woman To You?

I am on prednisone now for ten years straight, without ever taking a break. My dosage has been as much as 70mg to as low the current 5mg. I am on what the call a “maintenance” dose, which translates to “because you are on prednisone for so long, your body can't make its own, so…

The Sunday Revisit Of “A Pill Doesn’t Weigh Anything”

Originally Posted December 6, 2011 When I was first diagnosed with Sarcoidosis in 2006, my BMI was 22. With a healthy BMI being between 18.5-24.9, I was slim and “normal”. Now five and a half years later, with no pause in taking prednisone, my BMI is now 27.1, which translates to being 30 pounds overweight….

Snapshots Of My Life: Dealing With Nosey People

I have no water at my home for the past three days, and it’s not getting fixed until today. Long story. In any case, we have water stored away for emergencies such as this, but we were running out, so yesterday I went to the supermarket to buy water for bathing etc. I had two…

The Weekend Worthy Revisit: It’s Just Air

Originally posted October 10, 2011 What is it about vanity? No matter how any of us can profess we are not vain, we are at some intrinsic level. Some where deep inside even the humblest of people lies the vain gene. I don’t think of myself as a vain man, but to some extent, I…

Awesomely Amazing Happy Results

I had a right heart catheterization on Monday to determine what is the cause of the increase in my shortness of breath and huge drop in oxygen saturation with exertion. The possibilities were either my pulmonary hypertension worsened or my heart is going back into failure. Turns out, amazingly, it's neither! All of my pulmonary…

O Is For Operations

This is a Blogging From A to Z Challenge post. April 17th – O If you told me nine years ago today that by now I would have five different operations, four of them alone heart related, I would probably have laughed. And then if you would have told me that I would have a…

The Wisdom Of Angelina Jolie

Angelina Jolie is a beautiful, talented actress and a phenomenal humanitarian. Recently, when she learned that she had the gene for breast cancer, she took preventative steps and had a double mastectomy. Recently again, she had a blood test that showed she had markers for possible early cancer, and she had her ovaries removed. The…

Flashback Friday: The Nurse

Originally posted to my blog July 31, 2011 I have a real pet peeve with rudeness. It drives me up the wall, especially in the customer service area, and yes, nursing falls under that category too.I have been having a hard time with my breathing in the past couple of days and my chest hurts…

Flashback Friday: Pushing On Through

Originally posted to my blog June 17, 2011 My wife and I are very busy at this time of the year, and it seems we are always working or going to appointments. We work together and are pretty much together 24 hours a day. Yet, one day a week we try to have a date…

Be Patient

  Written by Basil Rene © 2014 All Rights Reserved

Choosing Life’s Battles

Back in my twenties, when I was engaged to my wife, someone bumped into and cut her off in a line in a store in the Flatbush section of Brooklyn. Why the hell we were there has left my memory, but I remember that the guy was a real bad ass looking dude, and I…

What Closing My FaceBook Account Taught Me

I joined Facebook in 2007 when a friend of mine moved to Asia and was using the site to upload photos of their new baby. They were my only friend on the site until 2008 when suddenly a whole bunch of people discovered the site and started to send me friend requests. At the time,…

Flashback Friday: There’s Something Fishy About My Cholesterol

Originally posted February 16, 2011 Originally Posted February 16, 2011 I never had high cholesterol. For years I have been checked and my cholesterol levels were somewhat perfect. I do have somewhat low “good cholesterol” levels, but the “bad cholesterol” is always low. Last year my cardiologist decided to put me on Lovaza, the pharmaceutical…

The Good, The Bad And The Ugly

Admittedly, I have not been keeping up with posts to this blog, but life happens and time seems to slip away from me more and more. Hopefully I will be able to get a grip soon and be able to devote time more appropriately to the blog. Until then, here is a quick update of…

Above Everything Else, Always Listen To Yourself

Life with a chronic illness is sometimes confusing, plain and simple. You have all these voices coming at you in different directions telling you many different things. If you are like me with different specialists for each condition, they all try to work together, but they all have their own separate opinions, and you don't…